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LATEST NEWS > Heart Families > Paediatric Cardiac Patient and Parent Involvement Group

Paediatric Cardiac Patient and Parent Involvement Group

4 Mar 2024
Written by Amy Ely
United Kingdom
Heart Families
NHS University Hospitals Bristol and Weston
NHS University Hospitals Bristol and Weston

Paediatric Cardiac Patient and Parent Involvement Group

Who is this aimed at?

Young people with a cardiac condition and/or parents of children/ young people with a cardiac condition

What does it do?

A group of young people/parents, with knowledge and experience of using the paediatric cardiac service, who help develop future research into caring for children with a cardiac condition.

What would you have to do?

You would be invited to work on any new research studies, sharing your experience and thoughts.  It could be as simple as we're thinking about researching a particular topic and want to know if you think it's an important topic to look at, or reading information leaflets and giving feedback from your perspective.  Some parents can get more involved and work on steering groups and even become co-applicants on studies.  It's entirely up to you how much/little you want to do and when you're available to do it.  We have held face to face meetings in the past, but it's mostly done virtually these days.  Either way, you will be paid for your time (and travel as appropriate).

Next steps?

If you're interested in joining the group or just want more information, contact Karen Sheehan, Research Sister.

Click to email Karen Sheehan, Paediatric Cardiac Research Sister

Or Tel: 0117 342 8889

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