AWARENESS CREATES ACCEPTANCE
‘I would like people not to just presume a child is healthy because they look “normal”. Maybe we are walking slower or using a pushchair with an older child for a reason!’.
‘I would like people to realise you know your child better than anyone else and having a child with a CHD is not your fault’.
‘I would like people to try and understand or at least be aware of the battle that not just our children but us as parents are fighting against this disease. I’d like them to realise how difficult it actually is and be able to talk openly without being accused of looking for attention’.