Learning to live beyond bereavement

Heart Heroes is in it’s 3rd year and as a charity we have noticed an increase in demand for support and more recently the bereavement side of the Cardiac World. This sadly is the stark reality of having a child with a complex heart condition. 


Forever Phoenix, named after 3 year old Phoenix who recently passed, is in the process of being launched to support families through grief. Sometimes this grief may not even be through the death of a heart child but grief of loss of identity or the grief for a child with a life limiting heart condition. Shock, trauma and the unknown can be hard to deal with whilst caring for a poorly child.


Forever Phoenix will initially be a support group for those that reach out and we would love to be able to offer the Grief recovery programme. Currently, sadly there is little support for families who have lost a child with a heart condition. We hope to work closely with the cardiac team and bereavement support at The Bristol Children’s Hospital which is where most of the children receive their medical care.


‘When you are suffering, on a daily basis, with the pain of a broken heart, there is one major question you need to ask yourself: Do I want to continue to suffer this pain for the rest of my life? Many people think this is the only option, and the fate they must endure forever. Many become accustomed to finding themselves in tears at odd moments throughout their days when they think of a love or relationship lost. Others believe that their loss has destroyed their happiness and sense of security, and now feel that they will be bitter and joyless forever. That is not the case. You have options that can move you out from under this cloud’. Grief Recovery Method Programme. https://www.griefrecoverymethod.com/evidence-based

How can you support?

Sign up to our Give Hope Campaign https://heartheroes.co.uk/givehope/ pledge a specific amount, fundraise for us or contact us to learn more.