‘It can be very lonely as a heart parent, especially if your child is complex so having events thats are fun for the children also the parents gives us that little break from the busy hospital lives we normally live. Its great way to meet people that understand the struggles we face every day and just get you as a person who cares for your child (not a lot of people understand our lives) and its nice to talk openly with similar people.

And obviously it is lovely to have someone like Kelly always there wanting to help us in any way she can and push a smile on our faces whenever possible. We all appreciate having someone like Kelly running Heart Heroes’