Children’s heart charity opens its doors in Suffolk

A charity which supports families of children with serious heart conditions is setting up a new hub so it can extend its reach.

Heart Heroes has opened a branch in Suffolk, so it can help even more families, with its regular events, support groups, and signposting services.“Heart Heroes supports families of children living with heart conditions and our goal is for children and their siblings to be included in all our events, along with parents, grandparents, aunties, uncles and any other close family,” said charity founder Kelly Cornish.

 

“By opening the Suffolk centre, we can reach more families by putting on local events for them, which will include coffee mornings where parents meet and support each other.” The Suffolk Hub is being run by mum-of-three daughters Lisa Carter, from Stowmarket. Lisa’s middle child, Evanee, eight, was born with a serious heart condition, and was looked after at the Evelina London Children’s Hospital. 

 

“I found out during my 20-week scan and it was a real shock,” said Lisa. “Fortunately, when Evanee was born she wasn’t quite as poorly as the doctors had feared.”

Evanee has coarctation of the aorta, which is a birth defect where part of the aorta is narrower than usual. She had surgery at nine days old, at five months, and again when she was two, when she had a pacemaker fitted.

“She’s doing fantastically now, she’s very active and even running laps around the school field, which is really building her stamina. She can do most things, but she’s not allowed to do contact sports, because of the pacemaker.”

Lisa found the experience of having a child with a heart condition isolating, and so she wants local families going through the same thing to find support through the new Heart Heroes Hub.

She said: “There will be a lot of families going through what we did. When I was new to everything I was really lost, and I would love to have known about Heart Heroes then. It will also be great for Evanee to finally be able to mix with other children who have been through the same thing she has.”

The first meeting takes place on Monday May 30, from 2-4pm at Stowupland Village Hall, where there will be activities for the children and a chance for parents to chat. For more information about the Heart Heroes Hub in Suffolk, and the meetings, call Lisa on 07808 807735 or email Lisa@heartheroes.co.uk.