Heart Hero Alice modelling the gorgeous Heart Heroes bows made by Bea’s Bows for our Virtual fair and kindly donated back by the winner.
As you may know we have been shortlisted for the award of CHARITY OF THE YEAR something we are not taking lightly and we are very proud to be involved in. We are up against some fantastic charities. However the voting has been opened again so if you can spare 5 minutes of your time and you feel us worthy, give us a vote please http://www.soglos.com/awards/vote
Heart Heroes founder Kelly had a lovely chat with Heart Heroes Ella and Sammi this evening.
Ella is 27, her heart condition is Transposition of the great arteries and she has had 3 open heart surgeries.
Sammi is 28 and had coarctation of the aorta, narrowing of the pulmonary artery, multiple VSDs and a faulty valve and she’s had 4 open heart surgeries.
Both are mummy’s to two gorgeous boys. Ella and Sammi are doing a Q & A session on Thursday 23rd @ 7.30pm on what it is like growing up with a heart condition ❤️
A huge thank you to JB Event Hire for making this happen. JB will be setting up bell tents with lights, bunting and blow up beds all disinfected to a high standard!! We have been told the children do not know about this so it will be a total surprise!!
Hello and welcome to our page. Heart Heroes was set up in 2018 to support children living with heart conditions and their families within the South West. We wanted to support by arranging events and get togethers so that families can come together to support each other. Having had a family member with CHD who sadly had passed away at 10 months old, Kelly the founder felt she wanted to give back to all the amazing heart children and families.
Kelly voluntarily oversees the running of the charity along with the team Zoe, Pete, Sarah, Jo, Rose, Amy, Gemma, Nicola and now Ella. We are based in Gloucester but have plans for a Bristol and Wales Heart Heroes hubs, all very exciting. We work closely with Bristol children’s hospital, St Michaels Bristol and the CHD Network South west. We’ve recently had a joint project with BCH and St Michaels creating Heart Patient journey folders. Also we have funded some new iPads along with iTunes vouchers for the children whilst on Dolphin ward.
You can keep up to date and receive our monthly newsletter by registering here https://heartheroes.us3.list-manage.com/subscribe?u=b6394e19e780a7dcabd7905eb&id=2b850e51ad
400 Heart Patient Journey Folders have been delivered to Bristol Royal Hospital for Children for the Dolphin (cardiac) ward.
This was a joint project with the ward for parents to have a point of reference for the hospital, local directions, support, Heart Heroes information/pen and pockets for any medical information ❤️ We look forward to receiving feedback.