Today is the first day of our Awareness creates acceptance campaign.
‘I would like people to understand that CHD can’t be cured and lifelong checkups are needed.
And I would also like people to understand that to us the anniversary of the surgery is both a celebration of life/second birthday and a really hard memory to have to cope with every year’.
‘I would like people to not be scared to ask questions and include my heart child’.
‘I’d like people to know that although he looks perfectly normal on the outside and has no immediate health issues. Medically he’s not like most others and there’s a reason I worry more with him’.
‘That with every cry “help me mummy “ “I wanna go home” every bloods that are taken every procedure every surgery we scar and they scar in so many more ways then physical that leaves those memories etched into your brains and hearts that don’t fade away.
For every battle won however small be that they are building an appetite again or they even took medication well. For the future being so unknown and scary at times but being so thankful for every milestone and every year we make. In the lyrics of a song “Hoping for the best, but expecting the worst.
Are you gonna drop the bomb or not?”.
For being told countless times “ your so brave I don’t know how you do it I couldn’t “ there isn’t a CHOICE.
That a hospital would eventually feel more like a second home or at least somewhere you know very well.
That she is incredibly strong and resilient and yes children “do bounce back Sandra” but guess what even children can only take so much. That the older the heart child gets the harder it gets in so many ways.
That they have been through more in their small life’s then many have in their lifetimes. That we didn’t choose nor want this journey at times but thankful for those we have met and loved along the way. That miracles are real and they are proof of that’.
#awareness #acceptance #love #mentalhealth #mindset #motivation #coach #inspiration #heartwarrior