Heart Family Support

Heart Families survey!

https://www.surveymonkey.com/r/QSY5ZQH

Counselling

Counselling is a talking therapy that involves a trained therapist listening to you and helping you find ways to deal with emotional issues.
Sometimes the term “counselling” is used to refer to talking therapies in general, but counselling is also a type of therapy in its own right.

What can counselling help with?
Counselling can help you cope with:
* a mental health condition, such as depression, anxiety or an eating disorder
* an upsetting physical health condition, such as infertility
* a difficult life event, such as a bereavement, a relationship breakdown or work-related stress
* difficult emotions – for example, low self-esteem or anger
* other issues, such as sexual identity

What to expect from counselling
At your appointment, you’ll be encouraged to talk about your feelings and emotions with a trained therapist, who’ll listen and support you without judging or criticising.
The therapist can help you gain a better understanding of your feelings and thought processes, and find your own solutions to problems. But they won’t usually give advice or tell you what to do.
Counselling can take place:
* face to face
* in a group
* over the phone
* by email
* online through live chat services (learn more about online tools for mental health)

You may be offered a single session of counselling, a short course of sessions over a few weeks or months, or a longer course that lasts for several months or years.
It can take a number of sessions before you start to see progress, but you should gradually start to feel better with the help and support of a therapist.

MINDFULNESS

What is mindfulness? Mindfulness is the basic human ability to be fully present, aware of where we are and what we’re doing, and not overly reactive or overwhelmed by what’s going on around us. While mindfulness is something we all naturally possess, it’s more readily available to us when we practice on a daily basis.

Rule of Six Gives

THE RULE OF SIX 💙

As we know the rule of six applies to the limit on how many should mix in a group. Join us in the #ruleofsixgives by donating £6 to your chosen charity, SHARE AND TAG 6 FRIENDS to do the same. We are donating £6 to Hope for Tomorrow http://www.hopefortomorrow.org.uk

1. GIVING TO CHARITY MAKES YOU FEEL GOOD

2. GIVING TO CHARITY STRENGTHENS PERSONAL VALUES

3. GIVING IS MORE IMPACTFUL THAN EVER

4. GIVING TO CHARITY INTRODUCES YOUR CHILDREN TO THE IMPORTANCE OF GENEROSITY

5. GIVING TO CHARITY ENCOURAGES FRIENDS AND FAMILY TO DO THE SAME

6.CHARITIES NEED SUPPORT NOW MORE THAN EVER

Thankful Tuesday

THANKFUL TUESDAY

We are always full of thanks and appreciation when anybody supports us. Today our thanks go to our regular givers, that’s Heart families and charity supporters (you know who you are) but especially today for two lovely ladies who have been saving up and decided to donate £400 to us to cover the cost of an iPad, cover and case. Unbelievably kind and selfless, thank you just isn’t enough!!
 

‘It’s not about how much you give or what you give, it’s about the heart you have behind it all’ ❤️

 
 
 
 
 
 
 
 

Heart Heroes Teddy Hugs

Gloucester heart charity finds furry way to raise awareness

If you go down to the woods in Gloucester – or any location in the city for that matter – you are sure of a big surprise!

Because to raise awareness for the work it does, Gloucester charity Heart Heroes is leaving knitted teddies out and about in area, and anyone who finds them can keep them and is then encouraged to post on social media.

The teddies are all safely wrapped, and have been donated by two keen knitters in Gloucester. Each teddy comes with information about Heart Heroes, which supports families with children who have heart conditions. There is also a little poem inside:

You have found a Heart Heroes hug bear,

Please can you go onto our Facebook page and share,

We all need a hug during this crisis

These little things are priceless.

Amy Ely, who has just joined Heart Heroes to help with admin and raising awareness, dreamed up the idea of leaving the teddies out and about, and also wrote the poem.

“The teddies were all knitted by a friend of mine and her sister,” said Amy. “When they found out I was joining Heart Heroes they asked if we would like them – we said yes please! They’d rather remain anonymous, but we would like to say a big thank you to them.”

The keen knitters have donated around 70 bears to Heart Heroes. Most will be kept back to give to the heart families and to the children while they are in hospital. The rest are being left around and about in Gloucester.

Kelly Cornish, who founded Heart Heroes, added: “We had a call from a jogger who had found a teddy and she said it had really made her smile. This is really about bringing a bit of awareness about what we do, and to share a little happiness in these difficult times.”

Amy is not the only new addition to the Heart Heroes team. Also joining the charity, as patron, is Zoe Trotman, Cardiac Ward Sister at Bristol Children’s Hospital, which cares for many of the region’s young heart patients. Zoe will also be able to spread awareness of Heart Heroes and connect families who need support.

Zoe said: “I was delighted to be asked to be part of Heart Heroes as their passion for improving the lives of children and their families who have to live with congenital heart disease is amazing. Heart Heroes is a great resource for me as a ward sister as I know I can contact them if there is anything the ward needs or I would like, to help bring a smile to a patient’s face or just make their stay in hospital a little more fun. 

“For many of the children I look after they will have to come in to hospital many times in their lives and it’s a key part of their journey, but the support needs to carry on once they go home. Being part of Heart Heroes helps me to build that link as it’s great to receive feedback and ideas on how I can make the hospital stays better.”

For more information about Heart Heroes and the work they do to support families in Gloucestershire and throughout the South West,  email to Kelly at email@heartheroes.co.uk.

Written By Jo Symth- Word worker

https://www.punchline-gloucester.com/articles/aanews/gloucester-heart-charity-heart-heroes-finds-furry-way-to-raise-awareness

Heart Heroes Celebrating 2 years!!

It’s two years since Heart Heroes was created. Never have we looked back and thought this in not needed/wanted. Everyone met along the way, be it Heart children, families and supporters everyone has been simply amazing. Thank you so much!! Kelly (Founder)
 

A Special thanks to our trustees

Peter Cornish
Zoe Mansell

Rose Eberle

 

Our volunteers

Sarah Dingwall
Jo Roberts

Ella Stanley, Nicola Morris

Our Young Volunteers

Tilly

Evie

Josh

Jake

 
Patrons 
Gemma Keir
Zoe Trotman

and now our first employee Amy Victoria Ely

Local business support
 
Onymous
Local business Rocks
Holly Siddall-ILex Accountancy 
Alan- B creations
Kerry Richardson
James & Mel at JB event Hire
Campaign For My Brain
Z’s Beautique
Theresa Fisher- Tesco Quedgeley Community Champion
Abi Griffith
Chris Lewis
The Club, Tuffley Park
The Kings School, Gloucester
Omni
Vicki Lynn/Orchard Fundraising 
Sandersons
Fundzzle
The Old Station Nursery, Gloucester
 
A huge thank you to The Bristol Children’s Hospital Cardiac, Dolphin Ward and The CHD Network South West for their support too.
 

All your continued support is always really appreciated ❤️ thank you.

 

Heart Journey

‘This is Finley, he is 6 months old and has spent the first 5 months of his life on PICU in Bristol Children’s hospital. I had a normal pregnancy, only issues we had were reduced movements so when Finley was born everything seemed fine. That was until a few hours later when the midwifes noticed Finley was turning grey. They took him away and did some observations on him, his sats were below 50%. Hours passed by before we were told anything but after a while we were told Finley had a heart problem and was being transferred from Swindon to Bristol. They didn’t know what heart condition it was so we didn’t get much information. Myself and Ben were not allowed to go see him for about 5 hours. 

It was such a long wait but then we got taken to see him in SCBU and to talk to the doctors from Bristol who told us he probably wouldn’t make the ambulance ride. By the time we did get to see him he was already in the transport incubator ready to go!

We followed behind in the car and they when we got to Bristol we had to wait in the quiet room where we were told that Finley had TGA. (transposition of the great arteries) Mr Serban Stoica sounded very positive about his surgery so at 4 days old he went for his switch. A surgery which we were told would take 6-8 hours ended up taking 12 hours. Of course very worried we just knew something had gone wrong. After the surgery our surgeon came out to tell us that the switch went well but there were more complications and Finley came out of theatre on ECMO.
 
After 5 days we managed to get him off, though unplanned due to the machine clotting he managed off it better than everyone in Bristol expected. Things were starting to look well he was taken off the ventilator and IV meds were slowly coming off but he would then take a turn and be out back on the ventilator. This happened a few times but he took a bad turn at the end of April where he nearly died. He went down to the cath lab where they discovered that he had no coronary arteries to the left side of his heart.
 
We were told there was nothing to be done for him. We had a meeting with a few consultants, cardiologist and surgeons who told us our options. This was the worst meeting of our lives but then someone suggested stem cells. A few of the faces disagreed with this but we wanted to know more. a surgeon called Professor Caputo came to talk more about this stem cells with us. He explained that it has never been done in the U.K. before for how we need it to be used. It has been used for other things but this treatment would be purely experimental. What he wanted to try was to inject these stem cells into the left side of Finleys heart to help re grow his coronary arteries. There was no question about it, we had to try. So a week later we got the go ahead from the directors of Bristol children’s hospital and the stem cells were on their way.
 
They made it very clear from the beginning that we had no idea what was about to happen, how it would affect him and if it was to work we wouldn’t know about his future. He was in surgery for about 4 hours and came back fine. All went as well as it could have. He was soon making improvements and
There was talks about giving him a tracheostomy incase he didn’t cope of the ventilator but me and Ben wanted to give him a chance and see if he could cope since having these stem cells.He took a very slow wean off of his IV inotropes and his ventilator and within 3 months he was like a different child.
He has made so much progress and he’s happy at home. All of his check ups and perfect and everything seems to be heading in the right direction. So it seems that these stem cells have done exactly what we wanted them to’
We love being asked to share heart journeys and this certainly is an incredible journey .

 
 
 
 
 
 
 
 

National Suicide Prevention Day

We observe World Suicide Prevention Day each year on September 10. It’s a growing problem and the numbers tell a shocking story. Every 40 seconds someone takes their own life according to the World Health Organization (WHO). That’s about 800,000 people worldwide every year — although some estimates put that number closer to 1 million.

https://nationaltoday.com/world-suicide-prevention-day/

Heart Heroes is always here 💚