‘I wake up in the morning around 8.30 although I could probably sleep some more! Mummy gets me changed and she gives me my injection (to thin my blood) I don’t like this very much but mum says I am very brave! I then have my breakfast (usually granola) as that is my favourite! My mum then gives me some medicine, captopril, sildenafil and iron as these help my heart to work better! I then like to watch TV for a while as I’m still quite sleepy and i like to rest! I like to have a bath before lunch as I have quite some trouble going to the toilet and I have a sore belly so a warm bath helps me!’
